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Emotional-Behavioral Outcomes, Risk and Resiliency Factors, and Psychosocial Interventions in Children with Heart Disease

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Abstract

越来越多的孩子患有心脏病(HD) are surviving throughout childhood and into adulthood. Understanding the impact of congenital and acquired heart disease on the emotional and behavioral outcomes of these children is essential for a complete understanding of the morbidity associated with HD. Identification of both risk and resiliency factors can guide targeted interventions to improve psychosocial functioning. Using a developmental perspective within a risk and resiliency framework, this chapter will review the psychosocial outcomes of children with HD (including children receiving heart transplants, ventricular assistive devices, and implantable cardioverter defibrillators). In addition, global issues related to psychosocial functioning (i.e., transition to adult care, adherence, and family functioning) will also be presented. Finally, the literature to date on psychosocial interventions will be discussed.

Keywords

Congenital and acquired heart disease Psychosocial outcomes Risk and resiliency Parental coping Heart transplant
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Authors and Affiliations

  1. 1.Division of Behavioral Medicine and Clinical Psychology/Department of PediatricsCincinnati Children’s Hospital Medical Center/University of Cincinnati College of MedicineCincinnatiUSA
  2. 2.Piazza-Waggoner Pediatric Psychology and Behavioral Health, LLCWest ChesterUSA
  3. 3.Department of Pediatric CardiologyCleveland Clinic Children’s/Cleveland Clinic Lerner College of Medicine of Case Western Reserve UniversityClevelandUSA
  4. 4.Cardiorespiratory DepartmentGreat Ormond Street Hospital for ChildrenLondonUK

Section editors and affiliations

  • Bradley S. Marino
    • 1
  1. 1.Department of Pediatrics, Divisions of Pediatric Cardiology and Critical Care MedicineNorthwestern University Feinberg School of Medicine, Ann & Robert H. Lurie Children’s Hospital of ChicagoChicagoUSA

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